How generosity saved a boy from a fatal disability

How far can you go as parents to save your child? How generous can you be to save someone’s life? With the help of his family and the generosity of others, 12-year-old Jomari is finally winning the battle for his life after being diagnosed with a fatal disability right after his birth.

It was 2004 when the Portugis family had just settled in Palawan, an island province far from their hometown in Bohol. They lived in a small but well-built house. Juris, the head of the family, had acquired a decent job. Life was starting to become convenient.

That same year, Sergia gave birth to Jomari, who was immediately diagnosed with a physical disability. This troubled Juris and Sergia because they knew that their child’s condition might put his life at risk.

The doctor who attended to Sergia revealed that her son has a renal and urinal disability. The disability prevented the infant to lose body wastes normally because of irregularity of the skin on his anal and reproductive organ.

“The doctor told me that an operation should be performed immediately before the trapped body wastes could cause infection to my son’s internal organs,” the mother was emotional as she tried to remember the exact words the doctor said.

The plan was to create a temporary hole on the child’s abdomen area so the wastes could be extracted regularly. Estimated to cost around P30,000, the couple were worried that the operation might not push through since they spent most of their expenses for the birth delivery.

Optimistic, Sergia believed in the generosity of others during her son’s time of need. She approached different offices, talked to many individuals and appealed for financial support or free health services. Her husband also doubled his efforts by accepting more work after his day job. They prayed tirelessly for their son’s healing.

And just like answered prayers, generous people came to answer their plea. The mayor of their town provided transportation expenses so the family can travel to Puerto Princesa, the province’s capital, for the abdomen operation. The doctor who attended to Jomari only asked P15,000 and even allowed the parents to pay only when they already could.

The infant’s operation was successful. He can already extract waste through the hole on his abdomen. His parents constantly watched over Jomari and made sure he had everything he needed.

However, it was only a matter of time that Jomari’s health became unstable because of his abnormal condition. They needed to bathe him using distilled water to avoid infection on his abdomen. The distilled water didn’t work for a time and Jomari got infected. He suffered from constant fever and unbearable pain.

“It was hard for me to see my son suffer through that pain all the time,” Sergia shared. “He was still only a few months old and to see my child cry all the time because of the complicated situation was unbearable.”

After continuous effort to seek for assistance and hardwork of the parents, Jomari finally got his anal organ operated when he turned a year old. He can already perform a normal bowel movement.

Years passed by, the family returned to Bohol – their hometown. The child continued to bear the hole on his abdomen for his urinal waste. It was only recently that Jomari became a member of World Vision, a development foundation working in the communities through child-focused projects. The organization helped by supporting the check-up expenses of the child.

In 2015, the boy’s reproductive organ was operated after a series of check-ups. His abdomen hole, along with the pain he suffered all those years, was already stitched closed.

“The doctors, the staff of World Vision, and every generous people who helped my son, we are very thankful for them,” the mother expressed.

Now on his elementary years in education, Jomari is living a normal life without the trouble of pain and discomfort. Though, he is still waiting for his final operation to fully recover, Jomari and his parents will continue to fight until he is finally healed.

“We don’t have enough but God is good and He continues to send generous people to help us,” said Sergia.

Support children like Jomari, who deserves the opportunity to live healthily and to realise their dreams they never thought of. You can help turn a child’s life better and fill it with so much hope by Sponsoring A Child .